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@timtmd
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Tim Thurston replied to the topic How Do you Decide What Medical Interventions are Acceptable? in the forum Living With ALS 1 month, 4 weeks ago
My friend with ALS limb onset is now having increased breathing difficulties, uses TRILOGY at night and some daytime. Most recent FVC is 57% which prompts the conversation of gastrostomy tube. He is also losing weight. He has a lot of difficulty coming to grips with the decision to have a feeding tube, saying he does not now need it, un…[Read more]
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Tim Thurston became a registered member 11 months ago
Hello Tim,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Hello Tim,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]