@vance
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Vance posted an update 1 year, 1 month ago
I have been in the Centaur trial of AMX0035 since March of 2018 and my life has improved dramatically since I began. My results have, I think, been at the top of the scale for those on the trial.
I had noticed muscular problems in August of 2017 and in December of that year I received my diagnosis at the Mayo Clinic in Rochester. At that time,…[Read more] -
Vance became a registered member 1 year, 1 month ago
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Hello Vance,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Hello Vance, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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That is certainly great news Vance.
Our members may be interested in learning more at this webinar:
“Long-Term Survival of Participants in the CENTAUR Trial”
Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc from the Sean M. Healey & AMG Center for ALS at Mass General Hospital
Wednesday, October 21, 2020
2:00 – 3:00 PM EDT
Please join…[Read more]