@worldfalls
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Bevin replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 4 months, 3 weeks ago
Rebecca D., My pALS had the same problem with TUDCA, major blowouts (literally), so he was not excited to try the AMX-0035/Relyvrio. No side effects at all with Relyvrio, wonder what is different and why.
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Bevin replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 4 months, 3 weeks ago
My partner (pALS) has been on AMX-0035/Relyvrio since July 2022 as he was in the expanded access program. He complains of the terrible taste but has no side effects, chases it with coffee in the AM and a bourbon and coke in the evening, lol. He is also on Riluzole, but I give him a tablet at 6pm and then another one at midnight, as taking the…[Read more]
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Bevin became a registered member 4 years, 1 month ago
Hello Bevin, my name is Dagmar. I’m one of the forum co-moderators and wanted to welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. If you have any questions or concerns or even suggestions, just let us know, and we will do our b…[Read more]
Hello Bevin and welcome to the ALS forum. I’m glad you joined our group. I’m Amanda, one of the co-moderators of the forum. You are welcomed to join in on the conversations, discussions, post comments and respond to other members. You are welcomed to share information and resources you feel may be beneficial to our community.