ALS News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Bevin

Home Members Bevin
show less show more
Profile picture of Bevin

@worldfalls

  • Activity
  • Profile
  • Friends 0
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Bevin

    Bevin replied to the topic Relyvrio in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months, 3 weeks ago

    Rebecca D., My pALS had the same problem with TUDCA, major blowouts (literally), so he was not excited to try the AMX-0035/Relyvrio. No side effects at all with Relyvrio, wonder what is different and why.

     

  • Profile picture of Bevin

    Bevin replied to the topic Relyvrio in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months, 3 weeks ago

    My partner (pALS) has been on AMX-0035/Relyvrio since July 2022 as he was in the expanded access program. He complains of the terrible taste but has no side effects, chases it with coffee in the AM and a bourbon and coke in the evening, lol. He is also on Riluzole, but I give him a tablet at 6pm and then another one at midnight, as taking the…[Read more]

  • Profile picture of Bevin

    Bevin became a registered member 4 years, 1 month ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 4 years, 1 month ago

      Hello Bevin, my name is Dagmar. I’m one of the forum co-moderators and wanted to welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. If you have any questions or concerns or even suggestions, just let us know, and we will do our b…[Read more]

    • Profile picture of Amanda
      Amanda replied 4 years, 1 month ago

      Hello Bevin and welcome to the ALS forum. I’m glad you joined our group. I’m Amanda, one of the co-moderators of the forum. You are welcomed to join in on the conversations, discussions, post comments and respond to other members. You are welcomed to share information and resources you feel may be beneficial to our community.

Profile Photo peggy Profile Photo Misty Cicala

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online

Recent Replies

  • Does fungus cause ALS!
  • Does fungus cause ALS!
  • Does fungus cause ALS!
  • ALS TRIVIA – – “The Les Turner Foundation” – – Did you know?
  • Does fungus cause ALS!

Members

Newest | Active | Popular
  • Profile picture of Deborah Werner
    Deborah Werner
    Active 46 minutes ago
  • Profile picture of Gretchen
    Gretchen
    Active 47 minutes ago
  • Profile picture of Fran Finney
    Fran Finney
    Active 57 minutes ago
  • Profile picture of Maryann
    Maryann
    Active 1 hour, 44 minutes ago
  • Profile picture of Len Jax
    Len Jax
    Active 2 hours, 26 minutes ago

Forums

  • Coronavirus (COVID-19) and ALS
  • In Loving Memory
  • Living With ALS
  • ALS Awareness Month
  • Flash Briefings
  • A​ ​Forum​ ​for​ ​ALS ​Caregivers​
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Mobility Aides, Assistive Technology and Medical Equipment
  • ALS ​and​ ​Relationships
  • Research Topics
  • ALS Awareness and Advocacy
  • ALS News
  • ALS In The Media
  • Using our Forums
  • Most popular topics
  • Topics with no replies

ALS News Today Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy

ALS News Today Forums is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©2023 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account