https://www.sciencedaily.com/releases/2019/05/190501161224.htm I came across this article on Science Daily website. It discusses a possible treatment for people with fALS due to a mutated SOD1 gene.…
A press release from ALS Therapy Development Institute in Cambridge explains that even with successful public awareness campaigns such as the Ice Bucket Challenge many…
This study of out Penn State https://alsnewstoday.com/2019/04/26/prognosis-model-predicts-risk-respiratory-insufficiency-death/ may help doctors predict and treat pALS who are likely to start experiencing respiratory difficulties. By using this new…
https://alsnewstoday.com/ionis-sod1-rx-biib067/ Qalsody (tofersen) for ALS For pALS with familial ALS, are your doctors discussing medication, clinical trials or other treatments with you that are specifically…
The National ALS Advocacy Conference is right after ALS awareness month. ALS advocates will be in Washington D.C. fighting for better research and support for…
https://www.youralsguide.com/power-wheelchairs.html https://www.youralsguide.com/power-wheelchairs.html Does anyone have resources they can share that will help ease the expense for devices and equipment? I know the ALS Association has…
https://alsnewstoday.com/2019/04/05/human-bone-marrow-cells-hold-promise-als-therapy-mouse-study/ Transplanted Human Bone Marrow Cells Hold Promise as ALS Therapy, Mouse Study Shows
I was going through some articles from 2017. I found this one to be interesting. Have you heard about this research? I’ll be looking to…
I moved to New Orleans to be closer to my father when he had ALS. Around the same time Steve Gleason was diagnosed with ALS.…
Was you initial Diagnosis correct or were you diagnosed with something other than ALS initially? https://alsnewstoday.com/differences-between-als-and-ms/
Please confirm you want to block this member.
You will no longer be able to:
Please note: This action will also remove this member from your connections and send a report to the site admin. Please allow a few minutes for this process to complete.
