Advances in research
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Dogs and ALS
I was going through some articles from 2017. I found this one to be interesting. Have you heard about this research? I’ll be looking to…
Research on treatment of ALS associated with the SOD1 gene mutation
https://www.sciencedaily.com/releases/2019/05/190501161224.htm I came across this article on Science Daily website. It discusses a possible treatment for people with fALS due to a mutated SOD1 gene.…
Research is impacting treatment
This study of out Penn State https://alsnewstoday.com/2019/04/26/prognosis-model-predicts-risk-respiratory-insufficiency-death/ may help doctors predict and treat pALS who are likely to start experiencing respiratory difficulties. By using this new…
2019 National ALS Advocacy Conference June 9 – 11, 2019 – Washington, D.C.
The National ALS Advocacy Conference is right after ALS awareness month. ALS advocates will be in Washington D.C. fighting for better research and support for…
Are doctors treating or suggesting clinical trials based on genetic mutations associated with ALS?
https://alsnewstoday.com/ionis-sod1-rx-biib067/ Qalsody (tofersen) for ALS For pALS with familial ALS, are your doctors discussing medication, clinical trials or other treatments with you that are specifically…
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