The National ALS Advocacy Conference is right after ALS awareness month. ALS advocates will be in Washington D.C. fighting for better research and support for pALS. Is anyone attending? If so, in what capacity? What changes do you think are needed to better support pALS?
A press release from ALS Therapy Development Institute in Cambridge explains that even with successful public awareness campaigns such as the Ice Bucket Challenge many…
https://www.sciencedaily.com/releases/2019/05/190501161224.htm I came across this article on Science Daily website. It discusses a possible treatment for people with fALS due to a mutated SOD1 gene.…
https://www.youralsguide.com/power-wheelchairs.html https://www.youralsguide.com/power-wheelchairs.html Does anyone have resources they can share that will help ease the expense for devices and equipment? I know the ALS Association has…
This study of out Penn State https://alsnewstoday.com/2019/04/26/prognosis-model-predicts-risk-respiratory-insufficiency-death/ may help doctors predict and treat pALS who are likely to start experiencing respiratory difficulties. By using this new…
https://alsnewstoday.com/2019/04/05/human-bone-marrow-cells-hold-promise-als-therapy-mouse-study/ Transplanted Human Bone Marrow Cells Hold Promise as ALS Therapy, Mouse Study Shows
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