ALS News Today Forums | Mandy | Activity https://alsnewstoday.com/forums/members/acjm4536/activity/ Activity feed for Mandy. Fri, 17 Apr 2026 04:51:48 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 c6d0645a8232a1ae886f985f7aa9d230 Mandy replied to the discussion Do you experience muscle twitching? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-you-experience-muscle-twitching/#post-16250 Thu, 03 Sep 2020 15:53:40 -0500 Reply to Do you experience muscle twitching?

I’ve been diagnosed with probable PLS. I’ve been having symptoms for months (likely years), but most notably since about March. It was mostly weakness and left foot drop that I was experiencing at first, but just in the last couple of weeks I’ve started to get localized twitching, in my buttocks and my left upper arm. Those are the only… Read more

]]> 41ed4ee946e64938800a44806a30e597 Mandy replied to the discussion Are you getting a flu shot this year? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/are-you-getting-a-flu-shot-this-year-2/#post-16249 Thu, 03 Sep 2020 05:21:46 -0500 Reply to Are you getting a flu shot this year?

Yep! Every year. One year I forgot and got the actual flu. I never want the full-blown flu ever again. I was in so much pain. That was a few years ago. Now that I have PLS, I definitely don’t need it!

]]> 0b6ee946a46050325f47b979fa801bbe Mandy posted a new activity comment https://alsnewstoday.com/forums/activity/p/7377/#acomment-7416 Wed, 26 Aug 2020 00:20:50 -0500 Thank you so much! I’m so sorry about all your loss. Although I haven’t lost anyone to ALS, I lost my mom to Alzheimer’s/dementia, my brother to cancer, a sister to murder, and another brother to COVID. And now I’m sick! Life can be a doozy sometimes, but despite it all, I’m a pretty positive person. I wish I felt better, but people have it way… Read more

In reply to - Mandy became a registered member ]]> 65d9ac5fdabb7e04dbee97861086a88b Mandy posted a new activity comment https://alsnewstoday.com/forums/activity/p/7377/#acomment-7415 Wed, 26 Aug 2020 00:18:30 -0500 Hello! Thank you for the warm welcome. I’ve been tentatively diagnosed with Primary Lateral Sclerosis (PLS), so I’m hoping this could be a place for me since it’s so rare, there aren’t a lot of forums for PLS. I’m a married, mother of 4, in my mid-40’s. I really noticed something was wrong back in about March when my left foot wasn’t… Read more

In reply to - Mandy became a registered member ]]> 073b7e78fbf63d1e901ae1ccb3c0d922 Mandy became a registered member https://alsnewstoday.com/forums/activity/p/7377/ Mon, 24 Aug 2020 16:23:42 -0500 4