@acjm4536
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Amanda and
Mandy are now friends 1 year, 8 months ago
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Mandy replied to the topic Do you experience muscle twitching? in the forum Living With ALS 1 year, 8 months ago
I’ve been diagnosed with probable PLS. I’ve been having symptoms for months (likely years), but most notably since about March. It was mostly weakness and left foot drop that I was experiencing at first, but just in the last couple of weeks I’ve started to get localized twitching, in my buttocks and my left upper arm. Those are the only place…[Read more]
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Mandy replied to the topic Are you getting a flu shot this year? in the forum Living With ALS 1 year, 8 months ago
Yep! Every year. One year I forgot and got the actual flu. I never want the full-blown flu ever again. I was in so much pain. That was a few years ago. Now that I have PLS, I definitely don’t need it!
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Mandy posted a new activity comment 1 year, 8 months ago
Thank you so much! I’m so sorry about all your loss. Although I haven’t lost anyone to ALS, I lost my mom to Alzheimer’s/dementia, my brother to cancer, a sister to murder, and another brother to COVID. And now I’m sick! Life can be a doozy sometimes, but despite it all, I’m a pretty positive person. I wish I felt better, but people have it way wo…[Read more]
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Mandy posted a new activity comment 1 year, 8 months ago
Hello! Thank you for the warm welcome. I’ve been tentatively diagnosed with Primary Lateral Sclerosis (PLS), so I’m hoping this could be a place for me since it’s so rare, there aren’t a lot of forums for PLS. I’m a married, mother of 4, in my mid-40’s. I really noticed something was wrong back in about March when my left foot wasn’t cooperating.…[Read more]
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Mandy became a registered member 1 year, 8 months ago
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Hello Mandy,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Hello! Thank you for the warm welcome. I’ve been tentatively diagnosed with Primary Lateral Sclerosis (PLS), so I’m hoping this could be a place for me since it’s so rare, there aren’t a lot of forums for PLS. I’m a married, mother of 4, in my mid-40’s. I really noticed something was wrong back in about March when my left foot wasn’t cooperating.…[Read more]
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Hello Mandy, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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Thank you so much! I’m so sorry about all your loss. Although I haven’t lost anyone to ALS, I lost my mom to Alzheimer’s/dementia, my brother to cancer, a sister to murder, and another brother to COVID. And now I’m sick! Life can be a doozy sometimes, but despite it all, I’m a pretty positive person. I wish I felt better, but people have it way wo…[Read more]
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