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Watti

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@bgfactive

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    Watti replied to the topic Another theory! Causes of ALS in the forum ALS News 11 months, 1 week ago

    Hi Jim …There have been concerns (in places other than the US ) about bodies of water ‘clusters’ and so-called ‘blue-green algae’= (not blue, or green, and it’s not algae, but anyway)- in bodies of water/ rivers, such as the large cluster on ONE side of a big lake in France…In Australia, we have the mysterious ‘cluster’ around an area sourced…[Read more]

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    Watti replied to the topic c9orf72 ALS – Metformin as a prophylactic? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 4 months ago

    Hi David, I see your sn has the genetic repeat – but hopefully has not been diagnosed/ doesn’t ha e als (MND).

    I don’t have als but my dearest friend does. I too was wondering about metformin as a treatment or preventative. Its such an interesting drug. I doubt many will contact you about it as most don’t know much about the treatment side of…[Read more]

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    Watti replied to the topic CNM-AU8 Trial in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Well – I am stunned- my friend applied for and was selected for this trial (Brisbane, QLD, Australia) in March- and was due to have her first ‘dose’ (of drug, or placebo) – in the first week of the Covid lockdown…so NO trial drug for her!  The hospital suspended its trial/s due to Covid- with NO renew date! This has meant my friend has been…[Read more]

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    Watti and Profile picture of Danielle UskovicDanielle Uskovic are now friends 1 year, 11 months ago

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    Amanda and Profile picture of WattiWatti are now friends 2 years, 3 months ago

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    Watti became a registered member 2 years, 3 months ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 2 years, 3 months ago

      Hello Watti,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even…[Read more]

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      Amanda replied 2 years, 3 months ago

      Hello Watti, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us k…[Read more]

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