ALS News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Gigi

Home Members Gigi
show less show more
Profile picture of Gigi

@bghhoganyahoo-com

  • Activity
  • Profile
  • Friends 3
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Profile picture of Susan

    Susan and Profile picture of GigiGigi are now friends 2 months ago

  • Profile picture of Gigi

    Gigi replied to the topic Any news from Tofersen phase III clinical trial? in the forum Research Topics 9 months, 3 weeks ago

    You are correct Phase III of the Biogen Tofersen Trial ended in July of this year.  In April an extension of the Trial started for those patients who had already participated in the Trial, and wanted to participate, where everyone would now be getting Tofersen, even those previously receiving the placebo

    In addition Biogen has now just started a…[Read more]

  • Profile picture of Gigi

    Gigi replied to the topic AFOs: Are they worth it? in the forum Mobility Aides, Assistive Technology and Medical Equipment 11 months, 2 weeks ago

    I highly recommend AFO’s.  I use them when I want to walk more than just around the house…walk in neighborhood, grocery shopping etc.  My legs get far less tired and I can walk faster. Like some others I find them a little clumsy around the house. I also had to get over my ego and have found fun socks and shoes to make me feel better about t…[Read more]

  • Profile picture of Jennifer Zink

    Jennifer Zink and Profile picture of GigiGigi are now friends 1 year, 1 month ago

  • Profile picture of Amanda

    Amanda and Profile picture of GigiGigi are now friends 1 year, 1 month ago

  • Profile picture of Gigi

    Gigi replied to the topic In Loving Memory of The Sifford's that had ALS in the forum In Loving Memory 1 year, 1 month ago

    Amanda

    Thank you for sharing your family’s story.  I too have the SOD1 gene and am in a Clinical Trial.  Amazingly noone else in my very large extended family at this time is showing any symptoms.  Some have debated being tested due to new research in presymptomatic trials.  I would love to reach out to you to talk if you would be willing but am…[Read more]

  • Profile picture of Gigi

    Gigi became a registered member 1 year, 2 months ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 1 year, 2 months ago

      Hello Gigi,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions…[Read more]

    • Profile picture of Amanda
      Amanda replied 1 year, 2 months ago

      Hello Gigi, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]

Profile Photo Katherine

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online

Recent Replies

  • Have you had physical therapy sessions for your ALS?
  • Have you had physical therapy sessions for your ALS?
  • In Memory of Rick Jobus
  • Have you had physical therapy sessions for your ALS?
  • In Memory of Rick Jobus

Members

Newest | Active | Popular
  • Profile picture of John Watson
    John Watson
    Active 2 hours, 25 minutes ago
  • Profile picture of Andrea Krzysko
    Andrea Krzysko
    Active 3 hours ago
  • Profile picture of MaryConnolly
    MaryConnolly
    Active 4 hours, 2 minutes ago
  • Profile picture of Patty
    Patty
    Active 4 hours, 6 minutes ago
  • Profile picture of Bev
    Bev
    Active 4 hours, 8 minutes ago

Forums

  • Coronavirus (COVID-19) and ALS
  • In Loving Memory
  • Living With ALS
  • ALS Awareness Month
  • Flash Briefings
  • A​ ​Forum​ ​for​ ​ALS ​Caregivers​
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Mobility Aides, Assistive Technology and Medical Equipment
  • ALS ​and​ ​Relationships
  • Research Topics
  • ALS Awareness and Advocacy
  • ALS News
  • ALS In The Media
  • Using our Forums
  • Most popular topics
  • Topics with no replies

ALS News Today Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Recent Posts

  • My ALS Week: Voice Therapy, New Exercise Ideas, and the Loss of a Colleague
  • Radicava’s Real-world Safety Profile Matches Clinical Trial Data: Study
  • From a Devastating Diagnosis to “Embracing My Now” with ALS

ALS News Today Forums is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account