@bibzbidness
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Amanda and
Nona are now friends 1 year, 9 months ago
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Nona replied to the topic Best Advice or Information in the forum A Forum for ALS Caregivers 1 year, 10 months ago
We were given basic contact information for ALS association at the first clinic visit. No information was given by the neurologist other than the life expectancy was 2 to 5 years. I think I still feel angry that so little support was offered.
The best advice I received was from my brother who was diagnosed with Non Hodgkins lymphoma in 2003 and is…[Read more] -
Nona became a registered member 1 year, 10 months ago
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Hello Nona, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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Hello Nona,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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