Bill Corrigan

This week, my OT loaned me a recumbent tricycle! I love it because I can go out on my urban street and exercise and use my weak legs as much as they can put out! Now I have to figure out how to walk the dogs with it!

I got carbon fiber AFOs from Hagar prescribed by my neurologist and they are like ski boots. I didn’t know I might have options as that was earlier and now I know to research, ask and be stern. I have very weak legs now, so I couldn’t play pickle ball, so they are fine, they keep me upright.
I say get what you need now so you can do the things you…[Read more]

My biggest adjustment has been how difficult it is to get around. My diagnosis was Groundhogs day this year and I have weak feet and legs. No symptoms above my hips. Putting on clothes is hard. I miss running, but I am participating in wheelchair sports to get my excitement. I got a stairlift and I don’t miss climbing up stairs!

Thanks Dagmar. I’m trying to listen to my body and so far, other than weakness in my lower limbs, It just seems right to keep a “hard day hard, easy day easy” exercise/training regimen. The goals are what keep me from feeling sorry for myself when daily chores are so hard.

I’m transitioning from running marathons to (hopefully) racing in wheelchairs, then hand cycles*. I was walking 3 times a week, 3-4 miles each time. I plan to give that up. I am now going to a track 3 times a week and pushing the racing chair. I also go to PT and will be adding forward hand cranking for 10-20 minutes, and lying-down flat feet…[Read more]

I was diagnosed 3 months ago, and I mostly experience pain as a cramp or a pull of a muscle. Primarily in my legs where my condition is the worst. It always associated with movement, such as contracting or expanding a muscle.
If I feel other pain, it is soreness, from the times I over exert myself, which I try not to do.

I don’t feel acute…[Read more]

Congratulations Lisa! How exiting and great to hear the producers are after authenticity. May everything go smoothly for you.