ALS News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Bill Corrigan

Home Members Bill Corrigan
show less show more
Profile picture of Bill Corrigan

@billcorrign96gmail-com

  • Activity
  • Profile
  • Friends 1
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic Which ALS-related science, research, etc. topic is on your radar right now? in the forum Research Topics 1 week ago

    PTC-857, CARDINALS. I might participate in it, but I can’t start Relyvrio if I do. So if I started tomorrow, it would be 8 months before I could start Relyvrio. I am on Radacava ORS for a month or so now, and have a prescription for Relyvrio going through the Insurance rigamarole right now. I do think the science checks out on that one. So do I d…[Read more]

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic Scooter recommendations? in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 month, 1 week ago

    Sorry for the late reply, I have a TiLite AreoZ. Insurance paid for it. I just added knobby wheels! Looking forward to getting into more rugged terrain! Enjoy!

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic Travel Tips?? in the forum Living With ALS 1 month, 1 week ago

    I have done 2 international trips with family since my diagnosis 1 year ago. I also did a cross country drive with my adulty daughter and a 4 hour flight by myself (including driving to the airport long term parking and shuttle to the terminal, with a manual wheelchair.  This is a typical travel year for me. Next trip is the FLA keys with the…[Read more]

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic Travel Tips?? in the forum Living With ALS 1 month, 1 week ago

    I have done 2 international trips with family since my diagnosis 1 year ago. I also did a cross country drive with my adulty daughter and a 4 hour flight by myself (including driving to the airport long term parking and shuttle to the terminal, with a manual wheelchair.  This is a typical travel year for me. Next trip is the FLA keys with the…[Read more]

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic Scooter recommendations? in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 month, 2 weeks ago

    I skipped the scooters altogether and went for a manual wheelchair with a freewheel attachment and a smart drive. I have full use of my arms and chest still.
    with the free wheel I can go on all kinds of terrain. I leave it in my car so I have it when I need it.
    The smart drive is awesome! It “pushes” the chair and I can adjust how much it ass…[Read more]

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic Ankle-Foot Orthosis (AFOs): Your Questions, Tips and Shared Resources in the forum Living With ALS 4 months ago

    also get a toilator for your toilet. The plumber has to install it. Gives you four inches of additional height.

    ive been wearing my afos for 9 months now as my legs continue to get weak. I can’t walk anymore. I can muscle myself around with arm shoulder strength as so nothing of ALS above my hips.

    my shins get sore from foot drop. The AFOs h…[Read more]

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic Tired???? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 5 months, 1 week ago

    I’m 9 months into my diagnosis and while the way I do my activities has changed, my goal for them and execution has not. I kept my basic running training program and changed it from ambulatory to wheelchair based. I just completed the London Marathon in about 7 hours, 50 minutes. After only having the chair a week! I am now completing my ‘off…[Read more]

  • Profile picture of NJGuy

    NJGuy and Profile picture of Bill CorriganBill Corrigan are now friends 5 months, 2 weeks ago

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic Do you consider yourself a “hero” for living with ALS? How about a “survivor?” in the forum Living With ALS 5 months, 2 weeks ago

    Definitely not a hero; don’t feel like a survivor either. Maybe a warrior. But I think I was that before. I mean, I did 12 marathons before my diagnosis and you need a warrior attitude to do battle with pavement and gravity. If you want to win, you then battle the other racers as well. I’ve just kept that up.

    What’s new is I am now gracious.…[Read more]

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic In Loving Memory of Jonathan Maddock in the forum In Loving Memory 6 months, 1 week ago

    My sympathies to you for the loss of your husband/father. I hope he’s sailing with full wind in the sails, plenty of sunshine and just enough breaks to make the time fun!

    Bill

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic Sleeping in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 6 months, 2 weeks ago

    Sleeping is the toughest aspect of this for me. My legs are very weak. The weakness has  slowly but steadily progressed. I can use a walker but it’s tough. At night, everything below my hips is dead weight. I turn myself by grabbing the bed board and strong arm myself. My legs get cramps every time I move at night. I tried Baclophen and it didn’t…[Read more]

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic Your ALS Travel Essentials in the forum Living With ALS 8 months, 1 week ago

    I drove from Austin, TX to Cleveland OH, and in my Subaru Outback I could put my recumbent tricycle. The other great thing I did was get hand controls for brake & gas installed, so I don’t have to rely on my legs and feet for driving. Great adaptation!

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic How Has Your ALS Changed How You Exercise? in the forum Living With ALS 9 months, 1 week ago

    This week, my OT loaned me a recumbent tricycle! I love it because I can go out on my urban street and exercise and use my weak legs as much as they can put out! Now I have to figure out how to walk the dogs with it!

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 9 months, 1 week ago

      I know quite a few pALS who use (and love) their recumbent bikes. You’re in good company, for sure!

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic Carbon fiber vs plastic AFO in the forum Mobility Aides, Assistive Technology and Medical Equipment 9 months, 1 week ago

    I got carbon fiber AFOs from Hagar prescribed by my neurologist and they are like ski boots. I didn’t know I might have options as that was earlier and now I know to research, ask and be stern. I have very weak legs now, so I couldn’t play pickle ball, so they are fine, they keep me upright.
    I say get what you need now so you can do the things you…[Read more]

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic What is, or has been the biggest adjustment for you in living with ALS? in the forum Living With ALS 9 months, 2 weeks ago

    My biggest adjustment has been how difficult it is to get around. My diagnosis was Groundhogs day this year and I have weak feet and legs. No symptoms above my hips. Putting on clothes is hard. I miss running, but I am participating in wheelchair sports to get my excitement. I got a stairlift and I don’t miss climbing up stairs!

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic How Has Your ALS Changed How You Exercise? in the forum Living With ALS 11 months ago

    Thanks Dagmar. I’m trying to listen to my body and so far, other than weakness in my lower limbs, It just seems right to keep a “hard day hard, easy day easy” exercise/training regimen. The goals are what keep me from feeling sorry for myself when daily chores are so hard.

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic How Has Your ALS Changed How You Exercise? in the forum Living With ALS 11 months, 1 week ago

    I’m transitioning from running marathons to (hopefully) racing in wheelchairs, then hand cycles*. I was walking 3 times a week, 3-4 miles each time. I plan to give that up. I am now going to a track 3 times a week and pushing the racing chair. I also go to PT and will be adding forward hand cranking for 10-20 minutes, and lying-down flat feet…[Read more]

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic ALS and Pain in the forum Living With ALS 11 months, 1 week ago

    I was diagnosed 3 months ago, and I mostly experience pain as a cramp or a pull of a muscle. Primarily in my legs where my condition is the worst. It always associated with movement, such as contracting or expanding a muscle.
    If I feel other pain, it is soreness, from the times I over exert myself, which I try not to do.

    I don’t feel acute…[Read more]

  • Profile picture of Bill Corrigan

    Bill Corrigan replied to the topic ALS in the Movies …and YOU could be a "star" in the forum ALS In The Media 1 year ago

    Congratulations Lisa! How exiting and great to hear the producers are after authenticity. May everything go smoothly for you.

  • Profile picture of Bill Corrigan

    Bill Corrigan changed their profile picture 1 year ago

  • Load More
Profile Photo Katherine

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online

Recent Replies

  • Which ALS-related science, research, etc. topic is on your radar right now?
  • Which ALS-related science, research, etc. topic is on your radar right now?
  • artificial voice/speech equipment
  • Which ALS-related science, research, etc. topic is on your radar right now?
  • Which ALS-related science, research, etc. topic is on your radar right now?

Members

Newest | Active | Popular
  • Profile picture of Bill Corrigan
    Bill Corrigan
    Active 19 minutes ago
  • Profile picture of William
    William
    Active 1 hour, 19 minutes ago
  • Profile picture of Mark Wegmet
    Mark Wegmet
    Active 1 hour, 24 minutes ago
  • Profile picture of Michael Ellenberger
    Michael Ellenberger
    Active 1 hour, 25 minutes ago
  • Profile picture of Joe Pierce
    Joe Pierce
    Active 1 hour, 33 minutes ago

Forums

  • Coronavirus (COVID-19) and ALS
  • In Loving Memory
  • Living With ALS
  • ALS Awareness Month
  • Flash Briefings
  • A​ ​Forum​ ​for​ ​ALS ​Caregivers​
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Mobility Aides, Assistive Technology and Medical Equipment
  • ALS ​and​ ​Relationships
  • Research Topics
  • ALS Awareness and Advocacy
  • ALS News
  • ALS In The Media
  • Using our Forums
  • Most popular topics
  • Topics with no replies

ALS News Today Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy

ALS News Today Forums is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©2023 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account