brian-torgunrud
Forum Replies Created
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Thx for sharing, Jay. I’m also finding that the large muscle groups are doing better than the smaller ones – zippers are getting to be a struggle for my fingers lol. I am trying to listen to my body and take it easy when it tells me it is tired.
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I was diagnosed 2 1/2 months ago. I’m 68, retired, and a very active cyclist. I was riding 5 times a week, club racing, and working really hard for 1.5hrs per race/workout. I say “was” because I live on the Canadian prairies, so I’m taking a little winter break……..Yoga 3 times a week.   I was told, at my first clinic, that the best thing I can do wrt exercise is not to go to exhaustion and avoid high intensity (I’m paraphrasing). At my next clinic in 10 days I’ll press them a little more on exactly how far I can push myself – I understand that a more “subjective” definition of exhaustion (eg don’t exceed XX% of your max heart rate) is probably not going to be supported by research/data , so I’m really not expecting more specific guidance, and fair enough.
My main objective is to be active as long as possible, not to be able to ride my bike faster than the guy beside me, but it would be great to have both!! Having to ride with a group where I’m expected to pull my weight is a huge incentive to exercise hard, but I’d be happy to give that up if it means I can have more time with my family.
Anyone have any thoughts on the relationship between fitness and “longevity”
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I’m new to forum – diagnosed mid November, 2019. It was my slurring speech that ultimately got me looking for answers. The health care system took over and I was diagnosed shortly after my first visit to my Doctor.
I’ve been using a voice banking website – ModelTalker – to record my voice and manage the files. My question is: Is that what most pALS do, or is this something that really isn’t worth the effort? I also saw a reference to an iPad app – is there a popular iPad app that is commonly used?
I have a million other questions and am kind of giddy to have found this forum – I’ll have to pace myself.
Thx – Brian