Base

Name

Carene

Last Name

Wilson

Nickname

Carene

Year of Birth

1964

Gender

Female

Location

Arizona

Relationship

Patient

Short Bio

I was diagnosed with ALS in June 2024. My diagnoses came fast from what I hear of others stories. In February of 2024 I woke and was unable to hold my head upright. I was diagnosed with Dropped Head Syndrome a rare symptom of ALS. I had an EMG which tested positive for motor neuron disease.  I had lots of blood work to rule out other motor neuron diseases. I had a biopsy and it showed ALS and also Myositis an auto immune muscle disease. This is now my 4th auto immune disease. I also have autonomic neuropathy, sjogrens, discoid lupus, and now myositis and ALS. I have had health challenges for many years, but I have a wonderful life. I believe attitude is everything.

 

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ALS Website

How long have you or the person that you are caring for had ALS?

5 months

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