Carl McAndrew
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My husband has been taking Riluzole since his diagnosis on July 2019. His appetite is still great, but after a few months he can’t taste anything and his sense of smell is gone. So he backs off and takes one Riluzole a day, and in about two weeks the taste is totally back. When ever there is an event or a holiday he makes sure he is only taking one pill for at least two weeks before.
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I was diagnosed in July of 2019 and have been taking 2 Rilozole a days. About every two months or so ( I don’t an accurate number of days because it is different every time) I completely lose my taste. I cut back to one tablet a day, and in about a weeks time I get my taste buds back again.  When I feel my legs twitching very badly, I go back to two tabs.