[Caryl]

My 3 yr old grandson, in a discussion with his mother, told her; Nana must be a toddler because she is’ learning’ to talk and ‘learning’ to walk….his observation about my declining abilities. It was so sweet and innocent we had to laugh!!

[Caryl]

I was diagnosed with ALS in May 2022…I’m a 74 years old. I was told I have a slow moving variant. I am taking Rilutek, Radicava, and Relyviro.I’ve been taking them for about 6  monthss and am still fairly functional except for fine motor control.I have problems speaking and weakness on my right side.ity

My question is this…I have a serious lack of energy, being able to only talk or be active for 2 hours and then I’m exhausted.

I don’t know if this energy shortfall is due to the medication or the disease itself. Has anyone else experienced this???