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Hi everyone, can’t believe I’m writing this as this is not a forum I’d like to be part of but unfortunately it is one that I relate to. I am recently diagnosed With ALS And I guess I’ve been showing the signs for a year now and struggling to get diagnosed. Such a heinous disease that I am really struggling to come to terms with, does anybody ever really come to terms with this? Was told today by my professor today that 50% of patients die within the first two years and then the remainder is a broad spectrum. Hoping to get past the first two years to not be in that club but then on the flipside is my dignity going to be stripped from me with the disabling of my limbs. Am I going to be in a chair for the rest of my life, or for however long it takes to be destroyed by this disease. So many questions and so little answers. One of my mottos in life is there is a solution for everything but I have found out that there is not. Where do we go from here??
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