Forum Replies Created

  • Eric_N

    Member
    June 27, 2024 at 3:58 pm in reply to: 14th Toferson Treatment and coming up on a Year of Dosing!!

    My family had no known cases of ALS but I have a SOD1 abnormality in my
    genes. I would suggest pursuing the genetic testing because if he
    does have a known defect, it can open up new avenues of treatment and,
    just as helpfully, help to ignore treatments that do not apply.

    invitae.com did my testing at no charge. It took a couple of weeks to obtain results.

    Eric