@flemings
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Amanda and
Stacie Fleming are now friends 2 years, 4 months ago
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Stacie Fleming replied to the topic Any information on availability of Ibudilast? in the forum Research Topics 2 years, 4 months ago
Hello – My husband has been taking ibudilast for close to a year now. He gets it through Europe as well for about the same price that was questioned. He also takes Riluzole and Neudexta, along with a cocktail of vitamins. The doctor prescribed a very large dosage – my husband takes 50ml less than prescribed because it was too much for his stomach…[Read more]
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Stacie Fleming became a registered member 2 years, 6 months ago
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Hello Stacie,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even…[Read more]
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Hello Stacie, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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