Forum Replies Created

  • George Huxhold

    Member
    November 17, 2020 at 8:48 am in reply to: Rilozole experience?

    My dad takes 2 rilozole tablets per day. He is on an AVAP and has PEG. Within past week wakes up very foggy and short of breath. Feels like he may not be expelling enough CO2. He now reduced his rilozole to one per day and ALS team making adjustments on AVAP machine. Any suggestions as to how to expel the CO2 more proficiently? Could the rilozole contribute to the fogginess? Any tips we may be missing? He was diagnosed in June 2020. Thank you.