Guy Castonguay
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The biggest is losing my speech and having to depend on someone who doesnt think like me or priortize things by importance.
Being the house owner i see things differently and do things that need attention like registering for a new doctor rather than cutting grass. Grass can wait but getting in to get on a dpctor waiting list is number 1. Grass can wait a few hours. -
Hello Andy
Sorry to hear of your difficulties. I went thru the testing process with little to no pain. Biggest was my worry of the diagnosis because it took quite a few days-weeks to eliminate what it wasn’t. However we got thru it with an ALS confirmed diagnosis and a 2 to 5 year longevity factor. Why worst symptom is the phlem my saliva gland produces and I’m experiencing tiredness.
- An awful disease that I feel rips your body functions apart a piecue at a time.
So the tests are not the worse. It’s the diagnosis because there is no cure and this thing is terminal.