[Howard Rhoades]

John:  My history is very similar to yours.  The only pain early on was infrequent cramps.  Now that my legs are almost totally disabled however, I experience sporadic pain in certain joints – I.E., knees, ankles, hips, and occasionally my feet.  There is no pattern, no unusual activity,  just everyday living in a wheelchair.  Inquiries at my ALS Clinic have resulted in my doctor suggesting that arthritis or something not related to ALS and resulting from minimal leg activity is to blame.  So a glass of water and ibuprofen are on my nightstand for those times when the pain disrupts my sleep.  The frequency this solution is once or twice a week.  I am reminded of a friend’s definition of the letters we see everyday; ALS equals Adjustable Life Style.  It’s been accurate for the last four years!  Howard