ALS News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Isabelle

Home Members Isabelle
show less show more
Profile picture of Isabelle

@isabelle

is that Maze Ataxin2 potential treatment that one that is currenty tested in phase 1-2 trial ???…. otherwaize, Maze’s discovery is not really one and another lab seem to have taken the lead …..I am extremely interested in this trial since my hubby has a rare familial TARDP43 mutation …. like his mom most probably had as well …. View
  • Activity
  • Profile
  • Friends 1
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Profile picture of Isabelle

    Isabelle replied to the topic What's the latest news on AMX0035? in the forum Research Topics 1 year, 4 months ago

    It says “Conclusion: Phenylbutyrate was more effective than benzoate at disposing of nitrogen. Increasing phenylbutyrate dose may not result in higher nitrogen excretion due to decreased conjugation efficiency at higher doses. Combinatorial therapy with phenylbutyrate and benzoate has the potential to significantly decrease treatment cost without…[Read more]

  • Profile picture of Isabelle

    Isabelle posted an update 1 year, 4 months ago

    is that Maze Ataxin2 potential treatment that one that is currenty tested in phase 1-2 trial ???…. otherwaize, Maze’s discovery is not really one and another lab seem to have taken the lead …..I am extremely interested in this trial since my hubby has a rare familial TARDP43 mutation …. like his mom most probably had as well ….

  • Profile picture of Isabelle

    Isabelle replied to the topic To voice bank or not voice bank in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 year, 10 months ago

    thank you Steve and Jonathan …I do appreciate your comments and responses and will do my best to make it happen … without widening the wound that is already so painful and carefully hidden behind distractions and daily activities …thank you !

     

  • Profile picture of Isabelle

    Isabelle replied to the topic To voice bank or not voice bank in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 year, 10 months ago

    Hi all, I have a question : how to encourage your hubby to voice bank whithout hurting his feelings and destroying his spirits… how to encourage him to do it while he still talk and live as if nothing, hoping for a cure, hoping to get enrolled in a clinical trial, hanging to hopes and research while knowing too well how this disease steals…[Read more]

  • Profile picture of Isabelle

    Isabelle posted a new activity comment 1 year, 10 months ago

    thank you Dagmar for letting me join ! I love your optimism and your energy ! I saw many highly interesting topics and cannot wait to jump in …. have a wonderful day ! One day at a time …. my mother in law (also ALS fighter) used to tell me !

    View Conversation
    • Profile picture of Dagmar Munn
      Dagmar Munn replied 1 year, 10 months ago

      We are happy to have you here 🙂

  • Profile picture of Dagmar Munn

    Dagmar Munn and Profile picture of IsabelleIsabelle are now friends 1 year, 10 months ago

  • Profile picture of Isabelle

    Isabelle became a registered member 1 year, 10 months ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 1 year, 10 months ago

      Hello Isabelle,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]

      • Profile picture of Isabelle
        Isabelle replied 1 year, 10 months ago

        thank you Dagmar for letting me join ! I love your optimism and your energy ! I saw many highly interesting topics and cannot wait to jump in …. have a wonderful day ! One day at a time …. my mother in law (also ALS fighter) used to tell me !

        • Profile picture of Dagmar Munn
          Dagmar Munn replied 1 year, 10 months ago

          We are happy to have you here 🙂

Profile Photo Oussama Profile Photo Dave Dahl

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online

Recent Replies

  • “How Do You Navigate Difficult Topics Like Mortality?”
  • “How Do You Navigate Difficult Topics Like Mortality?”
  • “How Do You Navigate Difficult Topics Like Mortality?”
  • Pain
  • Pain

Members

Newest | Active | Popular
  • Profile picture of Len Jax
    Len Jax
    Active 3 hours, 3 minutes ago
  • Profile picture of Eric Jensen
    Eric Jensen
    Active 4 hours, 14 minutes ago
  • Profile picture of Lisa Brown
    Lisa Brown
    Active 9 hours, 8 minutes ago
  • Profile picture of Kathy stitz
    Kathy stitz
    Active 9 hours, 19 minutes ago
  • Profile picture of Ray Chandler
    Ray Chandler
    Active 12 hours, 18 minutes ago

Forums

  • Coronavirus (COVID-19) and ALS
  • In Loving Memory
  • Living With ALS
  • ALS Awareness Month
  • Flash Briefings
  • A​ ​Forum​ ​for​ ​ALS ​Caregivers​
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Mobility Aides, Assistive Technology and Medical Equipment
  • ALS ​and​ ​Relationships
  • Research Topics
  • ALS Awareness and Advocacy
  • ALS News
  • ALS In The Media
  • Using our Forums
  • Most popular topics
  • Topics with no replies

ALS News Today Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

ALS News Today Forums is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?
Verify you are not a robot

Forgot your details?

I remember my details

Create Account

Verify you are not a robot