@isabelle
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Isabelle replied to the topic What's the latest news on AMX0035? in the forum Research Topics 7 months, 3 weeks ago
It says “Conclusion:Â Phenylbutyrate was more effective than benzoate at disposing of nitrogen. Increasing phenylbutyrate dose may not result in higher nitrogen excretion due to decreased conjugation efficiency at higher doses. Combinatorial therapy with phenylbutyrate and benzoate has the potential to significantly decrease treatment cost without…[Read more]
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Isabelle posted an update 7 months, 3 weeks ago
is that Maze Ataxin2 potential treatment that one that is currenty tested in phase 1-2 trial ???…. otherwaize, Maze’s discovery is not really one and another lab seem to have taken the lead …..I am extremely interested in this trial since my hubby has a rare familial TARDP43 mutation …. like his mom most probably had as well ….
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Isabelle replied to the topic To voice bank or not voice bank in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 year, 2 months ago
thank you Steve and Jonathan …I do appreciate your comments and responses and will do my best to make it happen … without widening the wound that is already so painful and carefully hidden behind distractions and daily activities …thank you !
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Isabelle replied to the topic To voice bank or not voice bank in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 year, 2 months ago
Hi all, I have a question : how to encourage your hubby to voice bank whithout hurting his feelings and destroying his spirits… how to encourage him to do it while he still talk and live as if nothing, hoping for a cure, hoping to get enrolled in a clinical trial, hanging to hopes and research while knowing too well how this disease steals…[Read more]
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Isabelle posted a new activity comment 1 year, 2 months ago
thank you Dagmar for letting me join ! I love your optimism and your energy ! I saw many highly interesting topics and cannot wait to jump in …. have a wonderful day ! One day at a time …. my mother in law (also ALS fighter) used to tell me !
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We are happy to have you here 🙂
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Dagmar Munn and
Isabelle are now friends 1 year, 2 months ago
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Isabelle became a registered member 1 year, 2 months ago
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Hello Isabelle,
Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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thank you Dagmar for letting me join ! I love your optimism and your energy ! I saw many highly interesting topics and cannot wait to jump in …. have a wonderful day ! One day at a time …. my mother in law (also ALS fighter) used to tell me !
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We are happy to have you here 🙂
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