ALS News Today Forums | Isabelle | Activity https://alsnewstoday.com/forums/members/isabelle/activity/ Activity feed for Isabelle. Mon, 06 Apr 2026 01:42:45 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 c0077960bd3d97955554c34a978792ec Isabelle replied to the discussion What's the latest news on AMX0035? in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/whats-the-latest-news-on-amx0035/#post-18462 Tue, 13 Apr 2021 20:56:07 -0500 Reply to What's the latest news on AMX0035?

It says “Conclusion: Phenylbutyrate was more effective than benzoate at disposing of nitrogen. Increasing phenylbutyrate dose may not result in higher nitrogen excretion due to decreased conjugation efficiency at higher doses. Combinatorial therapy with phenylbutyrate and benzoate has the potential to significantly decrease treatment cost… Read more

]]> ebe48b817801838799156d83411ff39c Isabelle posted an update: is that Maze Ataxin2 potential treatment that one that […] https://alsnewstoday.com/forums/activity/p/11053/ Fri, 09 Apr 2021 17:32:07 -0500 is that Maze Ataxin2 potential treatment that one that is currenty tested in phase 1-2 trial ???…. otherwaize, Maze’s discovery is not really one and another lab seem to have taken the lead …..I am extremely interested in this trial since my hubby has a rare familial TARDP43 mutation …. like his mom most probably had as well ….

]]> 0 a5f6b3fbd1e8fb6eb65553f21d8e095e Isabelle replied to the discussion To voice bank or not voice bank in the forum Mobility Aides, Assistive Technology and Medical Equipment https://alsnewstoday.com/forums/forums/topic/to-voice-bank-or-not-voice-bank/#post-16445 Sun, 27 Sep 2020 20:17:37 -0500 Reply to To voice bank or not voice bank

thank you Steve and Jonathan …I do appreciate your comments and responses and will do my best to make it happen … without widening the wound that is already so painful and carefully hidden behind distractions and daily activities …thank you !

 

]]> b323bfd2a53ef786c6fb10e683d9f766 Isabelle replied to the discussion To voice bank or not voice bank in the forum Mobility Aides, Assistive Technology and Medical Equipment https://alsnewstoday.com/forums/forums/topic/to-voice-bank-or-not-voice-bank/#post-16424 Wed, 23 Sep 2020 21:56:06 -0500 Reply to To voice bank or not voice bank

Hi all, I have a question : how to encourage your hubby to voice bank whithout hurting his feelings and destroying his spirits… how to encourage him to do it while he still talk and live as if nothing, hoping for a cure, hoping to get enrolled in a clinical trial, hanging to hopes and research while knowing too well how this disease… Read more

]]> d22c8aa0258d4c76edb456a845c1b566 Isabelle posted a new activity comment https://alsnewstoday.com/forums/activity/p/7933/#acomment-7960 Wed, 23 Sep 2020 21:49:50 -0500 thank you Dagmar for letting me join ! I love your optimism and your energy ! I saw many highly interesting topics and cannot wait to jump in …. have a wonderful day ! One day at a time …. my mother in law (also ALS fighter) used to tell me !

In reply to - Isabelle became a registered member ]]> 4f0ba39c8a7f99b12b33232a072f64b9 Isabelle became a registered member https://alsnewstoday.com/forums/activity/p/7933/ Wed, 23 Sep 2020 00:59:58 -0500 3