Isabelle Z

Thank you for you, i am very impressed each day when i read our messages and news to be in contact, so close with people with the Same condition than i, with als , and to know that it is possible thanks to you

1. If we could see that death is a logical way continuing life and that our way with als is a way like any other way with illnes, to go on this way, slowly and thinking about what happens, perhaps it could help. I mean : not considering death like a tabou. My man has died very suddenly and i think he had no time to feel the real weight of life,…

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How are your days, what can you do and what kind of activities can you do? How do you organize your daylife with the illness, do you have to lie or to rest often in the day?

Rollator with many colours, with a seat where you can seat and be

pushed on both sides i mean back to the person who is pushing you and/or facing this person

I love this forum too because it’s so positive, that’s the best medication for me, so so important to keep smiling and having humour. Thank you.

What are the diferents effects if edaravone and how can you say someone that it does’nt wirk ( mon assurance vient de me refuser une deuxième cure de 6 mois parce que ma maladie avance plus vite avec edaravone que sans edaravone)but my doctors say diferents informations, finally i understsnd that it is a question of money and not of science

At the moment it woud be how is the evolution of the deseases and how you can adapt psychologicaly to what happens ( excuse my Bad englisch)

Pour moi aussi, c’était l’année du diagnostic avec en plus la privation de contacts sociaux à cause du Covid. Année difficile, j’y ai aussi perdu mon mari. Mais le plus difficile c’est ce passage de 2020 à 2021, que se dire cette nuit? Courage les amis de peine, nous sommes tous solidaires sla

translation:

For me too, it was the year of…[Read more]

Thank yoz Dagmar for your help, i ammgoing to do those exercices each day