@janette
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Amanda and
Janette Anne McIntosh are now friends 2 years, 4 months ago
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Janette Anne McIntosh replied to the topic Research in the forum Research Topics 2 years, 7 months ago
My mother got ALS in 1974 at age 50 and died in 1974. Her mother passed away at age 71 but little was known at the time about ALS. My youngest brother was diagnosed in July 2014 at age 55 and died in August 2015. My oldest brother who is 75 possibly has recently been told he has it although his appt is with his doctor in November. I’ve gone bac…[Read more]
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Janette Anne McIntosh replied to the topic Should I get genetic testing? in the forum Diagnosis Information and General Questions 2 years, 7 months ago
I did 23 and me but it didn’t definitely come back that I had high risk although it showed trending upward. It was bang on with high risk of colon cancer which I had. I don’t think I’d want to know.
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Janette Anne McIntosh posted a new activity comment 2 years, 7 months ago
Happy to see your reply. My brother was recently diagnosed. It’s in my family as mother, grandmother and younger brother both had ALS. I’d like to see the latest research on familial ALS
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Janette Anne McIntosh became a registered member 2 years, 7 months ago
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Hello Janette,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Happy to see your reply. My brother was recently diagnosed. It’s in my family as mother, grandmother and younger brother both had ALS. I’d like to see the latest research on familial ALS
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Hello Janette, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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