[Janet McElhanon]

I am in the second week of Healey Platform B, drug Verdepirstat, at Vanderbilt hospital research.  Not on the full dosage until next week, but haven’t noticed any side effects.  This is a 6 month trial with actual drug available after that time, if I’m not already taking it.

I am in my third year since right leg foot drop started my search for answers and 1 1/2 years from ALS diagnosis. Stairs are difficult but walking with my rollator and leg brace is ok. Balance is awful.  Hands somewhat affected . I feel very fortunate that breathing, swallowing, and speech have not been an issue. Look forward to reading the forums- not just for information, but the positive attitudes that so many Pals inspire us with. Thank you and keep up the good fight!!