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jan berkhey

Home Members jan berkhey
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@jberkhey

i,m new on this forum. I ,ts my way to cnnect with people, who also hve a motorneuron desease, i,m from holland, my english is not so very well. I want just all the other members healed. Iknow there is no cure at the moment. I concider stemcells in foreign countries. My neurologist isn,t agreed with that. But we wait and we wait. I hope that […] View
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  • Profile picture of Dagmar Munn

    Dagmar Munn and Profile picture of jan berkheyjan berkhey are now friends 3 years, 1 month ago

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    jan berkhey posted a new activity comment 3 years, 1 month ago

    hallo dagmar. het is makkelijk om in eigen taal te communiceren. Maar de vraag die ikstelde is wel belangrijk. Zijn er stamcel klinieken die inderdaad beloven wat ze zeggen. Ik heb er een berg geld voor over. maar word niet graag belazerd

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    • Profile picture of Dagmar Munn
      Dagmar Munn replied 3 years, 1 month ago

      I just spent the whole day at an ALS conference. The status of stem cell therapy was discussed… I will find it in my notes and reply tomorrow. I believe there is a clinical trial open to enrollment in California. I will look up the details for you.

      • Profile picture of Dagmar Munn
        Dagmar Munn replied 3 years, 1 month ago

        Dag Jan, here is a link via the NEALS Consortium website – – about the currently enrolling clinical trials on the Nurown stem cell therapy:

        https://www.neals.org/als-trials/search-for-a-trial/

        https://www.neals.org/als-trials/1332

  • Profile picture of jan berkhey

    jan berkhey posted an update 3 years, 1 month ago

    i,m new on this forum. I ,ts my way to cnnect with people, who also hve a motorneuron desease, i,m from holland, my english is not so very well. I want just all the other members healed. Iknow there is no cure at the moment. I concider stemcells in foreign countries. My neurologist isn,t agreed with that. But we wait and we wait. I hope that…[Read more]

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 3 years, 1 month ago

      Hello Jan (or should I say “dag”) – – my mother was from Amsterdam, so I learned to speak and read Dutch at an early age! I was happy to read that you are in Holland. Feel free to ask questions or join in the ongoing discussions. Tot Zeins!

      • Profile picture of jan berkhey
        jan berkhey replied 3 years, 1 month ago

        hallo dagmar. het is makkelijk om in eigen taal te communiceren. Maar de vraag die ikstelde is wel belangrijk. Zijn er stamcel klinieken die inderdaad beloven wat ze zeggen. Ik heb er een berg geld voor over. maar word niet graag belazerd

        • Profile picture of Dagmar Munn
          Dagmar Munn replied 3 years, 1 month ago

          I just spent the whole day at an ALS conference. The status of stem cell therapy was discussed… I will find it in my notes and reply tomorrow. I believe there is a clinical trial open to enrollment in California. I will look up the details for you.

          • Profile picture of Dagmar Munn
            Dagmar Munn replied 3 years, 1 month ago

            Dag Jan, here is a link via the NEALS Consortium website – – about the currently enrolling clinical trials on the Nurown stem cell therapy:

            https://www.neals.org/als-trials/search-for-a-trial/

            https://www.neals.org/als-trials/1332

  • Profile picture of jan berkhey

    jan berkhey became a registered member 3 years, 1 month ago

    • Profile picture of Michael Morale
      Michael Morale replied 3 years, 1 month ago

      Hi Jan, my name is Michael Morale. I’m the Director of Multichannel Content for ALS News Today. I wanted to welcome you and thank you for joining our forum. We hope that you will take time to go through all of the open conversations that are actively in progress, and feel free to join in. We strive to bring you the information that you need to m…[Read more]

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 3 years, 1 month ago

      Hello Jan, my name is Dagmar. I’m one of the forum co-moderators and wanted to welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. If you have any questions or concerns or even suggestions, just let us know, and we will do our best t…[Read more]

    • Profile picture of Amanda
      Amanda replied 3 years, 1 month ago

      Hello Jan and welcome to the ALS forum. I am Amanda, one of the co-moderators of the forum. We hope that you will take time to go through all of the open conversations that are actively in progress. Please feel free post questions, comment and provide feedback. We strive to bring you the information that you need to make your life better, and with…[Read more]

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