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Jennifer O'Brien replied to the topic A brand-new sub-forum: Let's discuss mobility, technology and medical equipment in the forum Mobility Aides, Assistive Technology and Medical Equipment 2 months, 1 week ago
For pALS who maintain use of one arm, this strap could allow hugging with two arms: https://www.today.com/parents/parents/arkansas-students-invent-tool-help-stroke-patient-hug-rcna16361
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Jennifer O'Brien replied to the topic A brand-new sub-forum: Let's discuss mobility, technology and medical equipment in the forum Mobility Aides, Assistive Technology and Medical Equipment 2 months, 1 week ago
I recently discovered the Vive Reacher Grabber 32”, an “Extra Long Mobility Aid,” which enables me to pick up things off the ground that I have dropped, or even reach for clothes on my shelves. Effective at picking up a tiny pistachio shell, or a piece of paper or a sweater. Light weight. Folds in half. I keep in the basket in from of my rolla…[Read more]
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Jennifer O'Brien replied to the topic A brand-new sub-forum: Let's discuss mobility, technology and medical equipment in the forum Mobility Aides, Assistive Technology and Medical Equipment 2 months, 2 weeks ago
I use a <b>Nitro Euro Style 4 wheel rollator,</b> which I got through Amazon, around the house. (I splurged and paid out of pocket.) I use the seat as a tray, e.g., my laptop, for moving things from room to room. It also has a great built-in bag at the front for transporting things. It’s very sturdy and helps prevent falls. Its only limitation i…[Read more]
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Jennifer O'Brien replied to the topic ALS and falls in the forum Mobility Aides, Assistive Technology and Medical Equipment 2 months, 2 weeks ago
Hi, Kathy,
I’m sorry you had a fall, and hope you’re feeling OK. Foot drop certainly can cause you to trip and fall, but I have fallen many times in the last few years simply by leaning inadvertently to only a minuscule degree, so unexpectedly. A neurologist friend said it indicates that the nerves in my feet aren’t correctly signaling the…[Read more]
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Jennifer O'Brien replied to the topic ALS Patients Can Get Medicare Cover For Home Healthcare in the forum ALS Awareness and Advocacy 3 months, 2 weeks ago
Thank you, Dagmar!
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Jennifer O'Brien replied to the topic ALS Patients Can Get Medicare Cover For Home Healthcare in the forum ALS Awareness and Advocacy 3 months, 2 weeks ago
Hi, the link to Rick Lobus’s article is broken – an “oops!” message saying article can’t be found comes up.Would you be able to repost it?
<div class=”container”>
<h1 class=”page-title”>”ALS Patients Can Get Medicare Cover For Home Healthcare”</h1>
Thank you,Jennifer
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Jennifer O'Brien replied to the topic Helping someone with ALS to feel less alone in the forum A Forum for ALS Caregivers 3 months, 3 weeks ago
Hi, Scotty,
Is your BiL getting guidance on assisted technologies for communication that might help him if he loses his ability to type? I’m thinking re: eye gaze technology. I don’t have experience with it; just aware of it, so don’t know if it would be effective for him or not.
Best wishes to you, your BiL and your family.
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Jennifer O'Brien started the topic Sharing a tip: ultra light rollator (walker) in the forum Living With ALS 11 months, 2 weeks ago
I’m grateful to Dagmar Munn for describing “rollators” a while back. I hadn’t heard the term. I’ve since discovered the ultra-lightweight, carbon-based rollator, made by ByAcre. It weighs 10.6 lbs. I can carry it upstairs with one hand or swing it into the car. It’s very expensive – just under $700 – but it has completely liberated me. (I do NOT…[Read more]
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Jennifer O'Brien posted a new activity comment 11 months, 2 weeks ago
Thank you, Dagmar and Amanda! I apologize for the delayed response of three months! 🙂 I just happened upon your note!
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Jennifer O'Brien replied to the topic ALS Neuron Damage Reversed With New Compound in the forum Research Topics 1 year, 2 months ago
Hi, Richard,
I’m glad you flagged this. As the news release states, it’s early days (mouse/cell studies), requiring toxicology and pharmacokinetic studies prior to initiating a Phase 1 clinical trial, butI will certainly be following. A top university, a peer-reviewed journal.
Thank you for sharing!
Jennifer
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Jennifer O'Brien became a registered member 1 year, 2 months ago
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Hello Jennifer,
Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Hello Jennifer, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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Thank you, Dagmar and Amanda! I apologize for the delayed response of three months! 🙂 I just happened upon your note!
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Hello Jennifer!! No worries, there are things to learn with this forum, messageing and so on.
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Hello Jennifer!! No worries, there are things to learn with this forum, messageing and so on.