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|Year of Birth||
Long Island, NY
Well, my aunt passed of familial ALS so I could become a patient down the road. Have not been tested for the gene yet, tough thing to do. I plan to participate in research at Columbia in NYC so they would allow me to find out if I choose to.
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|How long have you or the person that you are caring for had ALS?||
not caring for anyone with ALS, my aunt HAD it, my mother appears to maybe have FTD, looking at C9orf72