Base

Name

Jennifer Charney

Nickname

jennifer-charney

Year of Birth

1972

Gender

Female

Location

Long Island, NY

Relationship

Family

Short Bio

Well, my aunt passed of familial ALS so I could become a patient down the road.  Have not been tested for the gene yet, tough thing to do.  I plan to participate in research at Columbia in NYC so they would allow me to find out if I choose to.

How did you hear about us?

ALS Website

How long have you or the person that you are caring for had ALS?

not caring for anyone with ALS, my aunt HAD it, my mother appears to maybe have FTD, looking at C9orf72

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