Base

Name

Jennifer Charney
Nickname

jennifer-charney
Year of Birth

1972
Gender

Female
Location

Long Island, NY
Relationship

Family
Short Bio

Well, my aunt passed of familial ALS so I could become a patient down the road.  Have not been tested for the gene yet, tough thing to do.  I plan to participate in research at Columbia in NYC so they would allow me to find out if I choose to.
How did you hear about us?

ALS Website
How long have you or the person that you are caring for had ALS?

not caring for anyone with ALS, my aunt HAD it, my mother appears to maybe have FTD, looking at C9orf72
Privacy Policy and Terms of Use

I agree

Report

Harassment or bullying behavior
Contains mature or sensitive content
Contains misleading or false information
Contains abusive or derogatory content
Contains spam, fake content or potential malware

Block Member?

Please confirm you want to block this member.

You will no longer be able to:

  • See blocked member's posts
  • Mention this member in posts
  • Invite this member to groups
  • Message this member
  • Add this member as a connection

Please note: This action will also remove this member from your connections and send a report to the site admin. Please allow a few minutes for this process to complete.

Report

You have already reported this .