- Year of Birth
Long Island, NY
- Short Bio
Well, my aunt passed of familial ALS so I could become a patient down the road. Have not been tested for the gene yet, tough thing to do. I plan to participate in research at Columbia in NYC so they would allow me to find out if I choose to.
- How did you hear about us?
- How long have you or the person that you are caring for had ALS?
not caring for anyone with ALS, my aunt HAD it, my mother appears to maybe have FTD, looking at C9orf72