

Jens Buss
Forum Replies Created
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hi Isaac
if you dont use noninvasive ventilation yet, you should do.
I had this experience 10 weeks ago.
since I startet the niv ventilation, my appetite came back after 24 hours
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Hello everybody
amx 0035 is availabel allready … you just have to buy TUDCA and you need a doctor for presciption of
Ammonaps which is the trading name for Natriumphenylbutyrate.
I am doing exactly this medication since about 4 weeks now and I still feel good, no perceptible change in progress of the disease and no side effects.
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Hey all
I have very good experience with my Berkel Bike.
http://www.berkelbike.nl
You can used in and outdoors which I like a lot during warmer seasons.
So check out the link above.Jens
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Hi to all of you
I did the same, bought it from social medwork. But I take it for 10 days only, so no improvement yet. But starting from January I will combine it with TUDCA and Ammonaps. The idea is to copy AMX 0035. As you can see, I even try all what might be helpful. I’ll keep you updated if there is any improvement.
By the way, my name is Jens from Germany. I have been diagnosed with ALS since 18 months. I still can walk a couple of meters with actually no bulbar symptoms.
I am do my own trial, because my progress is too slow for being part of a official trial.Greetings Jens