@joannel
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Joanne Langfitt and
Amanda are now friends 1 year, 9 months ago -
Joanne Langfitt started the topic Dagmar's online book in the forum Living With ALS 1 year, 10 months ago
I read Dagmar’s fabulous book yesterday, and I want to read it again, but I cannot find it! Can anyone help?
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Joanne Langfitt changed their profile picture 1 year, 10 months ago
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Joanne Langfitt replied to the topic Multidisciplinary Clinics in the forum Living With ALS 1 year, 10 months ago
Nancy, I was diagnosed in November 2019. Fortunately, there is an FDA approved ALS Clinic about two hours from me, and I attended my first Clinic last month. The clinic members were numerous, positive, and very helpful; I only wish we met with them more than quarterly. Given the time frame between clinics, I don’t know if I would relocate. My…[Read more]
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Joanne Langfitt changed their profile picture 1 year, 10 months ago
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Joanne Langfitt became a registered member 1 year, 10 months ago
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Hello Joanne,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even…[Read more]
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Hello Joanne, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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