[Judy Silman-Greenspan]

Try taking it with a low fat snack. Food, in general, decreases riluzole absorption. Fatty food really decreases riluzole absorption. It comes in handy as a sleeping pill 1 hour before sleeping.

Best of luck.

[Judy Silman-Greenspan]

Yes, riluzole makes people tired = asthenia. it’s the greatest sleeping pill around combined with melatonin 5mg. It knocks me right out. For the daytime dose I make sure I am engaged in an active activity so I don’t feel it so much. I also take it with some food so it doesn’t give me heartburn. Fatty food really decreases riluzole absorption. You can tell by not getting the fatigue if you take it with ice cream or other fatty food.  I try to take the many supplements that Life Extension ALS program suggests.

I did a lot of research and found TUDCA over the counter. I take 1 gram twice a day. I had a prescription for sodium phenylbutyrate. It took 6 tablets to make the dose. I was gagging after 5 tablets so I stopped it. It tastes like sour milk. After all butyric acid is found in butter.

[Judy Silman-Greenspan]

Where were you able to get it? It’s not available in the USA. I tried getting my kids in Australia to bring it. They never heard of it there.