Forum Replies Created

  • Maya

    Member
    January 5, 2022 at 7:24 am in reply to: Disease Progression

    Amanda,

    All the information you provided was highly insightful!! So, thank you for sharing! Feels like I need to compile a binder or something now lol with all of this rich feedback I’m getting from everyone here…overwhelmed with gratitude. You all are a godsend, sending good thoughts to all!

    Maybe 2022 will bring a cure…?!

    Maya

  • Maya

    Member
    January 3, 2022 at 11:16 pm in reply to: Disease Progression

    Thank you very much @Richard and @Bill, for the information! I’m sorry I am just seeing your responses now, as I must have my notifications turned off; still trying to navigate this site. I will start looking more deeply into the FRS scale and trying to accurately track my symptoms etc.

  • Maya

    Member
    January 5, 2022 at 7:24 am in reply to: Disease Progression

    Hey Alex,

    I really really really appreciate your kind words of encouragement. Honesty is the best policy and I highly respect that, thank you! I am so grateful this community exists…what a wonderful blessing all of you are! I will take your advice to heart and do some deep thinking so I can take a personal inventory to know where I stand in all areas of life. And, so I can work on building a better future for myself and learn to sensitively adapt to inevitable changes. Although this disease is unfortunate, I’ve also realized it can be a gift if we come to realize our inner strength and choose to use it to help others. You guys are amazing, and I truly admire your inspiration to fight!

    Sending out incredibly radiant warm vibes to all!

    Maya

  • Maya

    Member
    January 4, 2022 at 10:55 pm in reply to: Disease Progression

    Thanks so much, Bill! I just joined that site as well and I look forward to connecting with many others!

    Maya

  • Maya

    Member
    January 4, 2022 at 10:29 pm in reply to: Disease Progression

    Thanks so much, Dagmar!! 🙂 This tool is incredibly helpful and I will continue to use it regularly. Thank you!