@kayerich
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Kaye and
Dee Hagen are now friends 1 year, 6 months ago -
Kaye posted an update 1 year, 8 months ago
Ordering a shower chair with casters!!!
Our Shower is totally accessible, but grab bars weren’t making a shower enjoyable as gripping with one hand & washing & shampooing with one hand
was tense! Thanks for the info!!
Any good tips for rolling over in bed??
Kaye-
Hi Kaye. I also struggle to shower with one hand. I use a long grab bar to help keep me steady. Showering with my one good hand (thank God it’s my right hand) is a challenge but I manage. As for moving about in bed, we installed a grab bar secured with a large sliding flat base under the box spring, similar to safety bars found on hospital beds.…[Read more]
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Amanda and
Kaye are now friends 1 year, 9 months ago -
Kaye changed their profile picture 1 year, 11 months ago
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Kaye replied to the topic Rilozole experience? in the forum A Forum for ALS Caregivers 1 year, 11 months ago
I started on Riluzole in June when i was diagnosed with ALS. I take it 1 hr before lunch, and at bedtime. No noticeable side effects. Prescription did specify empty stomach, 1 hour before or 2 hrs after a meal, & 12 hours apart.
As ALS has affected my voice, i have started banking my voice. What an intetesting experience!!!
Kaye -
Kaye became a registered member 2 years ago
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Hello Kaye,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or even…[Read more]
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Hello Kaye, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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