Forum Replies Created

  • Kim Russell

    Member
    December 5, 2023 at 2:52 pm in reply to: Your tips and advice for managing dysphagia (swallowing issues)

    I found a video on YouTube that suggested thickening agent for liquids. I ordered SimplyThick Easy Mix from Amazon and it should be here Thursday. Apparently thicker liquids pass slower and that gives weakened muscles time to react.

  • Kim Russell

    Member
    July 18, 2023 at 2:02 pm in reply to: COVID-19 and correlation with ALS symptoms

    Hello! I’m new here. My name is Kim Russell and for a while I truly thought Covid had given me long lasting problems. I had it in Dec of 21. A few days after I quit running fever and tested negative I wound up having these episodes that were kind of like seizures.  I stayed 4 days in the hospital starting Christmas Eve while they ran all sorts of tests and couldn’t find anything. Anyway, after all that I never seemed to recover my energy and was talking different and walking much slower.  When I didn’t fully recover I saw my PCP and she ordered a nerve study which showed damage in my legs, back and arms. She referred me to a neurologist and it was there that the doctor asked us to think back before Covid, was there anything that happened that we might have excused as getting older, being out of shape. Sure enough back in 20 I started having trouble taking lids off of jars. By the time we moved in June 21 I was of little help moving boxes. I would pack them but not pick them up. That made us think Covid didn’t cause my problems. In September of 22 I received the ALS diagnosis. While I know Covid didn’t cause it I firmly believe it accelerated the disease.

     

     

  • Kim Russell

    Member
    July 18, 2023 at 12:31 pm in reply to: COVID-19 and correlation with ALS symptoms

    Hello! I’m new here. My name is Kim Russell and for a while I truly thought Covid had given me long lasting problems. I had it in Dec of 21. A few days after I quit running fever and tested negative I wound up having these episodes that were kind of like seizures.  I stayed 4 days in the hospital starting Christmas Eve while they ran all sorts of tests and couldn’t find anything. Anyway, after all that I never seemed to recover my energy and was talking different and walking much slower.  When I didn’t fully recover I saw my PCP and she ordered a nerve study which showed damage in my legs, back and arms. She referred me to a neurologist and it was there that the doctor asked us to think back before Covid, was there anything that happened that we might have excused as getting older, being out of shape. Sure enough back in 20 I started having trouble taking lids off of jars. By the time we moved in June 21 I was of little help moving boxes. I would pack them but not pick them up. That made us think Covid didn’t cause my problems. In September of 22 I received the ALS diagnosis. While I know Covid didn’t cause it I firmly believe it accelerated the disease.

     

     

  • Kim Russell

    Member
    February 9, 2024 at 11:47 am in reply to: Removing phlegm-mucus from throat

    What type of suction machine do you use?