@klp318
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Kerry Penn replied to the topic If I could transform healthcare organizations. I’d change… in the forum Living With ALS 1 month, 3 weeks ago
Our insurance provider has an online pharmacy which we are required to use for ongoing medications. It is great except the only way to contact them is by phone or US mail. Since speaking via the phone is no longer an option for me, it sure would be nice to be able to contact them by email. I know that my husband, who is my caregiver, can make a…[Read more]
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Kerry Penn replied to the topic Member Check In in the forum Living With ALS 11 months, 2 weeks ago
I am so very grateful for my husband who is my caregiver. I’m grateful that he is so supportive of my love of photography. I am so grateful that he continues to take me to places where I can get my photography fix. And I’m grateful that I’m still able to do what I love.
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Kerry Penn replied to the topic New study shows ALS/MND damage to nerve cells can be repaired by improving the energy levels in mitochondria in the forum Research Topics 1 year, 3 months ago
My son sent this article to me just a few days ago. Praying and crossing my fingers that they find what they’re looking for and it will help all of us affected by ALS.
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Amanda and
Kerry Penn are now friends 1 year, 4 months ago -
Kerry Penn replied to the topic Has your State made the COVID-19 Vaccine available to pALS and caregivers? in the forum Coronavirus (COVID-19) and ALS 1 year, 4 months ago
I’m in Georgia. I contacted my GP (I’m her first and only ALS patient) and asked if my husband (my caregiver) and I could get the vaccine. Her office replied right away and we’ll be getting the vaccine on Friday. I believe Georgia is making the vaccine available to those who are 65+ and at high risk.
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That is wonderful Kerry!!
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Kerry Penn replied to the topic Vaccine on the horizon in the forum Coronavirus (COVID-19) and ALS 1 year, 5 months ago
I plan to get the vaccine as soon as I can. My husband/caregiver plans to as well.
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Kerry Penn changed their profile picture 1 year, 6 months ago
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Kerry Penn posted a new activity comment 1 year, 6 months ago
Thanks for the welcome. I was diagnosed January 2017 and have been reading ALS News Today for a couple of years. You have been an inspiration! Thankfully, ALS progression has been slow so far. While I use a motorized wheelchair and have difficulty speaking there is so much I can do still. I think the most important things, at least for me, is to…[Read more]
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Kerry Penn became a registered member 1 year, 6 months ago
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Hello Kerry,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Thanks for the welcome. I was diagnosed January 2017 and have been reading ALS News Today for a couple of years. You have been an inspiration! Thankfully, ALS progression has been slow so far. While I use a motorized wheelchair and have difficulty speaking there is so much I can do still. I think the most important things, at least for me, is to…[Read more]
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