Lynn Rogers
Forum Replies Created
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I have an AFO for both feet. I started out with left and in March had to get for my right one ( I’m still having problems getting it fitted just right). My question is, I still do not feel “stable” with mine and have to use either a Walker/Rollator or hiking sticks. Does anyone else use assistance with their AFO’s?
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Hi! I am “new to the club” having been diagnosed in Dec 2022. I tried Riluzole but it affected my liver so they took me off. I am participating in a trial – MN-166 obviously don’t know whether I have the placebo or actual drug. I have been on Radicava since Jan and have just started taking Relyvrio. It’s all I can do to get the Relyvrio down and keep it down. I’m not a listerine fan so I’ve been putting a peppermint candy in my mouth as soon as I take it to try and help with taste. Does anyone have any suggestions – or something that works for them?
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Maryann, I have noticed when I am taking the Radicava that I am a little more wobbly than normal.