Forum Replies Created

  • Linda

    Member
    April 11, 2023 at 6:54 pm in reply to: First Symptoms

    Loss of balance, started falling, foot drop on left side, lost control of left side of body. horrible muscle spasms that start at night! Neumerous lab tests, MRIs, EMG/NCVs. Now either in lift chair, rollator walker, or wheelchair. I was so very healthy and active at 75, was told I was healthy as a horse, we don’t know why you can’t walk!!!! Neurologist are very difficult to finally get an appointment with!!! Was just diagnosed 01/06/2023. I pray for a cure!!!

  • Linda

    Member
    February 12, 2023 at 4:55 pm in reply to: Newly diagnosed? What do you want to know right now?

    What to do about horrible muscle spasms that start only at night??
    ALSO, what about being so incontenant??? are both of these just what happens with this ALS thing????? Was just diagnosed 1/06/2023!!!!