MICHAEL ADACKAPARA

Hi Sonsu,

Some good ideas are provided in the replies above. Our heart pumps the blood to various parts of our body. Once it reaches the capillaries at the extremities, it does not have the pressure to push it back to the lungs/heart. Normally the muscle movements during activities such as walking will compress the capillaries to provide this…[Read more]

Hi Iancu,

Please  don’t  give up hope. Eventhough there is no real  cure for ALS in modern medicine, some ALS  patients have  benefitted from alternative treatments such as: integrated or holistic treatments, naturopathy, homeopathy, etc.  In fact there are about 50 cases  of confirmed ALS reversals. There is very little commonalty in approa…[Read more]

I recently recorded my voice through Team Gleason (grant) using Acapela (program).  Once Team Gleason approves your request, you will be contacted by someone from Boston Children’s Hospital to guide you through the process.  They will loan you the appropriate equipment free.  You may want to do voice banking (most useful) and message banking (l…[Read more]

I was diagnosed with limb-onset ALS in 2018.  I have tried and continue to try several supplements, including CBD/THC.  So far I have not experienced much pain other than occasional muscle cramps.  Personally I think that a turmeric supplement and the cannabis products have helped me.

Cannabis: My oral dosage right now is 50 mg/day THC. I mix eq…[Read more]

After I was diagnosed with limb-onset ALS in 2018, I added a wheelchair accessible bathroom and a closet at a cost of approximately $50K, with no outside funding.  This included:

1.  A shower stall with a constructed bench and several grab bars;

2.  A tall toilet with an electric bidet (electric bidet=$250; non-electric=$25);  I like the ele…[Read more]