@madackapara
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MICHAEL ADACKAPARA replied to the topic A brand-new sub-forum: Let's discuss mobility, technology and medical equipment in the forum Mobility Aides, Assistive Technology and Medical Equipment 3 months ago
I recently recorded my voice through Team Gleason (grant) using Acapela (program). Once Team Gleason approves your request, you will be contacted by someone from Boston Children’s Hospital to guide you through the process. They will loan you the appropriate equipment free. You may want to do voice banking (most useful) and message banking (l…[Read more]
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MICHAEL ADACKAPARA replied to the topic Pain management and ALS in the forum A Forum for ALS Caregivers 5 months, 2 weeks ago
I was diagnosed with limb-onset ALS in 2018. I have tried and continue to try several supplements, including CBD/THC. So far I have not experienced much pain other than occasional muscle cramps. Personally I think that a turmeric supplement and the cannabis products have helped me.
Cannabis: My oral dosage right now is 50 mg/day THC. I mix eq…[Read more]
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MICHAEL ADACKAPARA replied to the topic Modifying your Home in the forum Living With ALS 5 months, 2 weeks ago
After I was diagnosed with limb-onset ALS in 2018, I added a wheelchair accessible bathroom and a closet at a cost of approximately $50K, with no outside funding. This included:
1. A shower stall with a constructed bench and several grab bars;
2. A tall toilet with an electric bidet (electric bidet=$250; non-electric=$25); I like the ele…[Read more]
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MICHAEL ADACKAPARA became a registered member 7 months, 1 week ago
Hello Michael,
I would like to personally welcome you to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations w…[Read more]
Hello Michael,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]