Forum Replies Created

  • Mark

    Member
    September 7, 2023 at 3:55 pm in reply to: Taking multiple ALS medications

    I take the 3R’s and my Medicare advantage plan covers the lion share of the exorbitant cost.  As others have said, I’m hopeful that they’re doing some good.  Their’s no way to know of course since I don’t know what my progression would be without taking them.  I haven’t had any unpleasant side effects, although as everybody has mentioned the taste of Relyvrio is terrible (I’ve discovered it’s not quite so bad if you let the powder dissolve in the water glass for 5 minutes or more.  Try it!)

  • CNM-Au8 at the 30 mg dosage.  It’s showing very promising results in a clinical trial.  I like that it’s in the planning stage for Phase 3 and hopefully would succeed there and then be available to patients within a reasonable time period.

    Coya 302.  It sounds promising but it’s very, very early in its clinical testing.

    Mark

  • Great job, Svarog, in compiling this list!  It’s very encouraging that there are quite a number of experimental medications that have shown some success in trials.  I’m also encouraged in looking at your chart to see that studies to find effective treatments for ALS are ongoing throughout the world.

    Mark