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  • Michael Brewton

    Member
    August 19, 2021 at 2:27 pm in reply to: Update us on the research and trials you are in!!

    I’ve been in the Healey Platform trial on regiment C (CNM-Au8).  I finished my 24 weeks in April and have been the open label, active drug for 16 weeks.  It has not changed my progression at all.  I have sporadic, limb onset(legs first), slow progression.  I can’t say this treatment has worked for me, but it might for others.  I will finish the open label in hopes that it does start working….

  • Michael Brewton

    Member
    June 17, 2021 at 3:06 pm in reply to: How do you define an ALS cure?

    I would define a “cure” as restoration back to a normal state.

    A “treatment/therapy” is anything that slows, halts, or slightly improves condition of the pALS.

     

     

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