Forum Replies Created

  • Melton McClanahan

    Member
    March 28, 2023 at 6:23 pm in reply to: Which ALS-related science, research, etc. topic is on your radar right now?

    Afternoon All,
    I’m scheduled to start PTC-857 at the end of April.  I’m currently on Relyvrio and Riluzole. I’m blessed that my wife’s company insurance covers both products. While I also decided to turn my truck back over to the bank, so that I could afford the co-payments.  Kaiser, also, approved me to get a 3rd opinion outside their network, and that’s whom I’m participating in the clinical study through.

    As far as delaying, ALS is a beast with no known good outcomes and if you can participate in any new studies that could slow it down, then participate!  Don’t get me wrong everyday, my body reminds me the beast is still here, so I’m trying to slow it down as much as possible!

    Looking forward to engaging with you guys in the future!

    God bless,

    Melton

  • Melton McClanahan

    Member
    March 29, 2023 at 1:50 pm in reply to: Which ALS-related science, research, etc. topic is on your radar right now?

    Awesome news. Please keep us updated! Thank you

Report

Harassment or bullying behavior
Contains mature or sensitive content
Contains misleading or false information
Contains abusive or derogatory content
Contains spam, fake content or potential malware

Block Member?

Please confirm you want to block this member.

You will no longer be able to:

  • See blocked member's posts
  • Mention this member in posts
  • Invite this member to groups
  • Message this member
  • Add this member as a connection

Please note: This action will also remove this member from your connections and send a report to the site admin. Please allow a few minutes for this process to complete.

Report

You have already reported this .