My lovely bride of 38 years has just released her first YouTube video. Diagnosed with Bulbar ALS in 2018, Kathy has lost her speech, the use of her hands, arms and legs. What makes this new video so remarkable is that Kathy produced all of the documentation and gave direction to the team using her eye gaze system.
Her new video is titled “Holy Rosary of Light – Luminous Mysteries”. We understand many of you do not pray the Rosary and many others are not Catholic. However, it is beautiful production and we wanted to share this moment. Kathy’s faith is deep and genuine. It has sustained her during this most challenging journey and the extraordinary team at Mass General and the Healey Center have given Kathy the time to complete this project. ALS News policy prevents me from sharing the video link. If you would like to view the video, please send me an email at [email protected]
Her eye gaze system includes; Grid3 software and a GridPad 15 from Smartbox. This is coupled with a Tobii Dynavox camera.