Forum Replies Created

  • ED

    Member
    October 28, 2021 at 6:10 pm in reply to: Riluzole side effect

    I tried Riluzole for six weeks. It made me very fatigued. I quit it and a couple of days later I got back to normal.

  • ED

    Member
    July 15, 2021 at 7:49 pm in reply to: How informative are your doctors?

    My doctors are up front with info, but I let them know that I have done many hours of research myself.

  • ED

    Member
    September 17, 2021 at 5:47 am in reply to: SUPPLEMENTS TO SLOW ALS PROGRESSION

    I also quit Riluzole after six week trial. It didn’t slow my progression at all, plus caused me to be fatigued all the time. I could just eat a meal and be wiped out and have to rest for an hour.

    Two days after stopping the Riluzole I was back to normal on energy level.

    As far as supplements,(I have tried many) the only one that I know for sure helps me is Curcumin with black pepper extract.
    I also take vitamins B,C,D3,E plus CoQ10.

    I know that if I’m delivered from this it will be by prayer and God’s grace.