@mrvanhoeijen
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Amanda and
Bert are now friends 1 year, 2 months ago -
Bert replied to the topic Searching for caregiver support groups – – in Europe and beyond? in the forum A Forum for ALS Caregivers 1 year, 2 months ago
I actually just posted this on Instagram. You inspired me:
https://www.instagram.com/p/CN6pvcnphSh/?igshid=1k30antialwl6
If you are looking for your local ALS association, @als.mndalliance has a…[Read more]
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Bert's profile was updated 1 year, 2 months ago
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Bert changed their profile picture 1 year, 2 months ago
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Bert posted a new activity comment 1 year, 2 months ago
I hope the SOD1 drug will come out soon!
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Bert became a registered member 1 year, 2 months ago
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Hello Bert, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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I hope the SOD1 drug will come out soon!
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Hello Bert,
Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions…[Read more]
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