Base

Name

Nancy Gilkeson

Nickname

nancy-gilkeson

Year of Birth

1945

Gender

Female

Location

Oregon

Relationship

Patient

Short Bio

Started searching for medical help due to increasing atrophy of hands especially the right hand & decreased abilities in use, since March 2020 (probably happening over previous year or two.  Finally able to have Neurology evaluations, in Sept-Nov. & diagnosed with a non-specific, Lower Motor Neuron Disease (without Bulbar sx), possibly a variant of ALS.  I now have an appt with Neurology at OHSU for a 2nd opinion/Dx in March 2021.  Am gradually finding new things about myself like  prominent bone ridges of my tibias, my fibulas & ulnas which I had never before noticed.  Overall I am still doing pretty well, as I adjust to learning different ways to do things, (opening ziplocks, zipping, etc.)  So appreciate this community.

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How long have you or the person that you are caring for had ALS?

DX: LMND since Oct 2020 (3 months?)

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