Base

Name

Nancy

Last Name

Byler

Nickname

Nancee

Year of Birth

1941

Gender

Female

Location

Idaho

Relationship

Patient

Short Bio

Hi, I have had ALS for 20 years. An uncle had it too. I have SOD 1, D90A which I understand is a long survival form. A researcher at Kings College in London said there was a paper which researched Sod1 D90A. The defective gene came from a village in Sweden.

How did you hear about us?

ALS Website

How long have you or the person that you are caring for had ALS?

20 years

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