[Tom Farrell]

I was diagnosed 6 years ago with ALS Bulpar Onset. Like many of us the phrase: you better go home and get your affairs in order cause you only have 2 to 5 years to live.  Although after reading the books, watching the movies, and talking ALS for 4 years, yes I am grateful but at the same time very sad of the progression of many. The first 3 years I could not get into a trial because of my age (68) and lack of progression.  I do not believe there are any trials for PLS!!! I continue to pray for everyone with ALS and I do my share to advocate for anything that could be of help for those suffering with the horrible disease.